Scan and Test results.

 I haven't really written about my health issues since it all began but will be backtracking and adding in posts and hope to be able to have them in some kind of order if you would like to go back and read from the beginning. If the latter is true then just keep your eyes open for that post. 

 When this all began I wanted to keep an online journal here on my blog but things went so quickly even though at the time it didn't seem quick at all. I thought so many things would happen or I would have time for this or that but to my surprise, it didn't go quite like I would have liked it to. 

 For anyone just hoping on this rollercoaster, I call my life, Welcome, grab something to drink maybe even a snack. My name is Pamela, I have been married to my husband for 32 years and dating him for 33 years. We have 6 children. My son is 31, my daughter Samantha is 28, Bryan is 25, Nesie is 25, Deanna is 19, and Dorothy is 14. We also have 4 grandchildren 2 grandsons and 2 granddaughters. 

 I was adopted by my paternal Uncle and his wife. They are who I take about whenever I write about my parents if I talk about my biological then that will be the term I use while talking about them. My parents received me when I was two weeks old. 

 I hadn't been feeling well for quite some time (although to be honest I have been getting sick from the very day I was born). I kept losing strength and sleep was taking up most of my days and nights leaving me feeling even more tired. I knew something was wrong and when I found out I had diverticulitis we thought that was the answer but during a colonoscopy to check on my diverticulitis and at the time seeking a surgeon to remove my sigmoid from my colon they found a mass which they cut and removed which showed Cancer. 

 They were pretty sure they had it all and that I was at most stage 1 Colon Cancer but once they were able to do the Cancer Removal Surgery my results came back Stage 3 Colon Cancer. It had spread to my lymph nodes. As I said I am working on getting my notes from the last year or so together and adding them here so we are now going to take a big jump to now. 

 I finished my chemotherapy on July 21st. I had a few appointments after that date that will be added as I go along but we are going to keep our attention on my first set of scans and tests since then. 

 I had my colonoscopy in mid-September 2022. I have hemorrhoids, and my diverticulitis is still there, but where they did my surgery has healed well, and looks beautiful they said. My mammogram came back clean, but I am still waiting on the ultrasound they took of my ovaries. No news is good news, right? I see that Dr. later this month.

 I had my cat scans last Thursday. My Oncologists office called today to go over them with me. There is something on my thyroid (I already have hypothyroidism, and growth in the same area but not attached to the thyroid) that I didn't get the name of but will be confirming what action is needed next with my Primary Doctor who was given a copy of the scans. Called today but he had already left for the day so hope to hear from him by tomorrow. My oncologist is monitoring a few nodules on or in my lungs. Do forgive me I will update you when I know which it is. Instead of having a clear scan and being able to go another 6 months till my next scan I will be getting more scans in three months to check on my lungs.

 I had hoped to give everyone the all-clear for the next 6 months but it just isn't the case. I guess once you get Cancer you are always waiting for it to strike again. I didn't worry about it till I had it and now I can't shake the feeling of dread every time there is a test no matter how positive I try to be. I have a hard time sleeping and want to spend as much time with my family as I can. There is just never enough time to do it all. 

Today was a good day

 Today was a good day, I had breakfast, and a snack, and looking forward to dinner and dessert. Stuffed peppers, spaghetti, and Waldorf salad.

The mirage of an Oasis

 

Finally, they are letting me have clear liquids. Apple juice, water, and ginger ale.

Update: Shortly after they gave me liquids they took them back away someone made a mistake. So I am back to no solids or liquids only iv fluids, antibiotics, and the small sips of water to take any of the pill forms of medications that I am on. I can’t even chew gum because it stimulates my belly and colon. My mouth and throat are so dry.

At least I have lip balm to keep my lips moist. I had a very uncomfortable night but did get a few hours of sleep. The team and my Drs checked on me this morning they want the antibiotics to get a good hold before reintroducing liquids or solids so not sure how long this stay will be. Thank you to everyone for the calls, texts, comments, and prayers. They mean so much. Hugs

At a standstill

    Between homeschooling, family day, Narnia Night, and having my granddaughter over for the weekend, we have been super busy. Also, we were hit with a lot of information and are still sorting things out.

    First of all, when they find cancer they like to come up with a plan within the first 30 days. Because of my other health issues, it will take a bit more time to sort out. I have to get my Gynecologist to contact my Surgeon to see what his plan for the growth on my ovaries will be.

    When and if they cut me they want it to be once. My biopsies have been sent to a second pathologist for more testing. Also, I have to have more tests to make sure my cancer has not spread. They don't want to do anything with my diverticulitis right now unless it is an emergency and I was told I could eat anything as the seeds, nuts, etc are only a myth (so many doctors and patients disagree with this).

    We talked about weight loss surgery but we have kept food diaries in the past and I eat less than most people so my weight gain doesn't match my intake, so maybe more movement is needed which has gotten seriously less over the last 13 years due to pain from my fibromyalgia, back, and of course more weight gain from not moving as much. There just isn't an easy answer to all of this.

    To be quite honest it seems like we don't have all of the information we need yet. So until the doctor's talk, the results from the pathology come back, and I get more testing we are at a standstill. I am sorry I don't have any better news, my health issues just make it extremely hard for the doctors to come up with a plan to treat or medicate me.

    I hope to have more of an update in the coming weeks. I am scared, this isn't easy on me or my family. We are just praying and taking one day at a time, enjoying the time we have together, and finding joy in each day, until we can take the next step. Thank you to everyone who keeps asking how we are doing and for updates. Keep the prayers coming. Hugs.

A year in the life of Marksville

I won't paint a pretty picture for you because this year was not full of happy stories in the least. We lost 10 friends and family this year. such a large amount to lose in a years time. Sadly most were from overdoses which just floors me that the epidemic has hit so close to home. A few died of old age or accidents. So many lives lost and I know some did not have a relationship with the Lord which makes it all that much heartbreaking.

For our family even though we feel blessed for what we have, we lost so much over the last year. My faith was really tested. Some of my readers who know a few years after my husband's accident when all of our savings had been depleted  and before his disability kicked in, (which took forever) we ended up separated and homeless for just shy of two years combined. After all of that we just found out in October after paying on our storage unit that it had been sold for 300.00. It had our personal papers, pictures, lifelong objects, etc. We had been paying on it for more then a year we have been in our apartment. They wouldn't let us take anything out till it was paid off so we were making monthly payments and extra for the overdue amount. The numbers seemed to never end. We went without in many areas trying to make these payments as what my husband gets for disability hardly covers the bills. A few times we had car repairs or upkeep that kept us from paying so that didn't help either. Then our van broke down and there it sits in our yard useless till we can get it fixed. Not sure how long that will take.

This may sound gloom and some days it is. I am often reminded of an item or more that we really need or used to have and I get angered. It doesn't last long but it hurts. I feel for those who have fires I do, but with this our stuff is somewhere so I know it is out there being used. We just pray that no one steals our identities with the information that was in the storage unit. I ask my readers that if they know someone is going to become homeless to offer a safe place for their belongings till they get back on their feet.

Don't get me wrong, some days I feel relieved to not have to worry about the things that were in storage we didn't need that were just taking up space. I know most of the things can be replaced, but for the items that have sentimental value, worth, or personal. They can't be replaced, and those hurt the most. When my husband got his disability the state took most of it because they were housing our family in motels which we understand but because they took so much we had just enough to get a used vehicle and a down payment on our apartment. There wasn't enough left over to get both storage units open. I even borrowed money to be able to just get our furniture out of storage and a few other things.

Sometimes people don't understand what others are going through or just how hard things can be. What is sad is there are many people who don't even have what we have and that is scary. This is why when we can we try to help others out even if it makes things hard on our family.

So yes a few bad and sad things happened in the last year but there were also great moments. We have a church family that cares for us. Our older children visit when they can. We have our grand daughter Lilly over a few times a month, and had her most of the summer too. We became grandparents to another grandson this last summer so we now have two grand daughters and two grandsons to love.

We were able to take part in a few outings with our family which was much needed. Our children took part in many opportunities in our town and with their friends families which kept them pretty busy throughout the year. They are also doing well in school. Dorothy loves to swim and even though she had to give up swim club due to our van breaking down looks forward to swimming again as soon as she can. Deanna is over half way through her Criminal Justice classes this year and loves the classes she takes and has a clear goal for what she wants in the future. My son has become Deacon of our Home Church, Samantha is still struggling but making strides in her life path, Bryan got into some trouble last year and we have yet to be able to track him down or hear from him so we have been keeping him in our prayers, last but certainly not least Nesie is doing well, has a job she loves and enjoys going to each day as well as a volunteer job she does in between everything.

Besides our health issues my husband and I are doing well, making the best out of each day. I was able to read many books this year and even joined a book club. Check out my reading log here. I don't get there every month but I do read the books and keep up with what they are doing. One of our favorite things to do is play Call of Duty together. We would love to play games like Apex and Fornite together but we only have one TV and game system, so my husband plays those. I am yet to learn. I know that sounds silly but it has become one of the things we do for fun.

I want to thank all of our readers, friends, family, subscribers, and of course all of the companies I have had the pleasure of reviewing products for, for all of your support. A heartfelt thank you for the last year and for the year ahead. May everyone find something to be thankful for even in the darkest of times.